專題文章妳的不凡是因為妳數十年如一日的平凡,母親節快樂,一日變身公主計畫

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疾病的退化過程沒有止境,只會寂靜的一路邁向人生的終點,如果過程沒有夢想、歡笑與希望,那會多麼無趣又無力。謝謝那天的妳們,讓我看見堅持總有希望,如果過程中還多了一點歡笑,那是多麼幸運和幸福的事。
青少年神經性疾患,復能建議:
1.職務再設計的有薪工作
2.無障礙空間的活動環境
3.文藝性、符合興趣、夢想式的團體活動設計
4.一同參與活動的學員,活動結束後的同儕支持小組
5.長照政策盼往少年族群規劃
6.盼社會提供「青少年身障/失能族群」的友善環境




兩年前的今天,透過我的好朋友,王雪珮語言治療師的連結,我得以將妝髮興趣施展在小嫻身上,小嫻是位小腦萎縮症患者,中學後無再繼續升學,接受著長照服務,也跟一般少女一樣,愛漂亮、喜歡打扮,我們五個女生(王老師還帶了一個小幫手)一起搞了大半天,玩了一日變身公主圓夢計畫,那天媽媽從樹林推著她來到聊聊心理治療所,在這之前,媽媽要在沒有電梯的公寓裡將女兒揹上揹下,每一天。


我以前更active 和 aggressive ,創業這幾年為了工作適應不同的系統,對體制或有無奈,磨耗了不少,變得比較保守寂靜。本來這計畫也將胎死腹中,是王老師和案家的堅持,讓我有機會再次接觸當初熱情的自己。

疾病的退化過程沒有止境,只會寂靜的一路邁向人生的終點,如果過程沒有夢想、歡笑與希望,那會多麼無趣又無力。謝謝那天的妳們,讓我看見堅持總有希望,如果過程中還多了一點歡笑,那是多麼幸運和幸福的事。

過了這麼久,還是很激勵人心的! 祝天下媽媽母親節快樂!

青少年神經性疾患,復能建議:
1.職務再設計的有薪工作
2.無障礙空間的活動環境
3.文藝性、符合興趣、夢想式的團體活動設計
4.一同參與活動的學員,活動結束後的同儕支持小組
5.長照政策盼往少年族群規劃
6.盼社會提供「青少年身障/失能族群」的友善環境

資料來源:張銘倫臨床心理師、王雪珮語言治療師


On May 7 2020, at the invitation of a speech therapist, I helped a young girl with cerebellar atrophy achieve her dream of putting on a dress and becoming a princess. At the end of May, we were interviewed by an Apple Daily reporter, and the news came out.

Xiao Xian, she is a 17-years-old young lady, who lives in the woods of New Taipei City(Shulin Dist., New Taipei City, Taiwan).
She had abnormal walking posture in the fifth grade of the elementary school, often fell down suddenly, and suffered large and small body injuries. She was soon diagnosed with cerebellar atrophy, and the second grade of junior high school deteriorated to inability writing with a pen and walking , just can only sit and rest.

"Although her classmates take care of Xiao Xian, she always feels lonely." Xiao Xian's mother said that her daughter wanted to wear a wedding dress as a princess before her illness. Fortunately, Chang Minglun ( Julia Chang ), a clinical psychologist who rehabilitated her, was also a bride secretary. "Xiao Xian transform into a princess in one day"project came out. When Xiao Xian finished makeup, the moment her mother saw it, she couldn't help but choked and asked, "Is my daughter getting married?"

本文作者 張銘倫臨床心理師

  • publisher:
  • 聊聊心理治療所